LIVING WITH LUPUS



Lupus is a chronic auto-immune disease that can adversely impact many parts of the body. A 2014 study conducted by the Michigan Lupus Epidemiology and Surveillance Program found that minority women tend to develop lupus at "a younger age, experience more complications, and have higher mortality rates." While roughly five million people around the world are estimated to have lupus - including 1.5 million in the United States -- the Lupus Foundation of America reports that nearly two-thirds of the general public know little or nothing about the disease beyond its name. To help change that and combat the disease, here are some facts that you should know:

  • There are several different kinds of lupus, and no two cases are alike. Many scientists believe lupus develops in response to a combination of factors within and outside the body, including hormones, genetics, and the environment.
     
  • Some 16,000 new cases of Lupus are reported each year, developing mostly in younger people, ages 15-44.
     
  • Ninety percent of patients living with lupus are female.
     
  • Lupus is not contagious. You cannot catch it or give it to someone else.
     
  • While there have been findings that indicate that genes may somehow figure into the development of lupus, no one gene or group of genes has been proven to cause lupus.
     
  • Lupus is often referred to as the "great imitator" because its symptoms mirror those of many other diseases. This can make it difficult to diagnosis and, as a result, to treat.
     
  • People with lupus report experiencing a variety of symptoms including recurring low-grade fevers; extreme fatigue; butterfly-shaped skin rashes; joint pain and swelling; hair loss; ulcers on the nose or in the mouth; chest pain or breathing problems, kidney inflammation; gastrointestinal problems; blood clotting, and anemia. The occurrence of these symptoms is often referred to as flares or flare-ups. They can vary in intensity, degree, and frequency.
     
  • Lupus is not easy to diagnose, and it may take months or longer to confirm. People experiencing four or more of its symptoms with no other explanation for why they are occurring are encouraged to discuss lupus with their doctors.
     
  • Lupus is generally diagnosed by providing your doctor with a complete and accurate medical history; undergoing a physical examination, X-rays and lab tests. It is not uncommon for a medical practitioner to refer a patient to a rheumatologist who specializes in diagnosing, managing and treating the disease.
     
  • Early diagnosis, as well as avoiding triggers such as excessive exposure to the sun, can help in managing lupus. A rheumatologist can treat lupus with a variety of medications that can slow the progress of the disease and help lessen the discomfort associated with its symptoms.
     
  • While there is presently no cure for lupus, understanding the disease, how it presents itself, and possible triggers can help patients prevent flare-ups or make the symptoms less severe. Experts agree that the best course of action is to work closely with a doctor to develop, review and, when necessary, devise a treatment plan. While some people die from the disease, with close follow-up and treatment, research indicates that 80-90 percent of people living with lupus can expect to live a normal lifespan.
     

To learn more about lupus, visit the Lupus Foundation of America at https://www.lupus.org.


Information and statistics cited in this article were derived directly from the following sources:

https://www.lupus.org
www.lupusawarenessmonth.org/gopurple.html
https://resources.lupus.org/entry/facts_and_statistics
www.health.facty.com/conditions/lupus/10-symptoms-of-lupus/
www.lupuscorner.com

 


"The Black Women's Agenda, Inc."
5335 Wisconsin Avenue, N.W. Suite 440, Washington, DC 20015-2052
Office: 202.730.2637 Fax: 202.730.2638 Email: bwa@bwa-inc.org

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